2008
- Transplants featured in Lifesavers, Channel 5, 9pm
- Transplants in Mind is planning its transplant torch relay for 2008
- British Transplant Games 2008
- 2008 London Triathlon
- English Channel swim
- Experts invited to first International Amyloidosis Symposium
- Audio-visual arts project features an insight into organ donation and transplantation
- Education Centre, Alder Hey Children’s Hospital
- National Kidney Federation Annual Patients’ Conference
- Bridging the Future – New Opportunities to Increase Organ and Tissue Donation
- BUPA Great North Run and BUPA Great South Run
- Invitation to the 1st Public Meeting of SaBTO
- Charity seeks ‘paranormal investigators’ for haunted tower trip
- International Congress, ‘A Gift For Life. Considerations on organ donation’
- European Conference to debate issues
- Diabetes UK Annual Professional Conference 2009
Clearer, Fairer Funding for the Third Sector
Care Services Minister, Ivan Lewis, has announced new funding arrangements for Third Sector organisations in health and social care that will make funding more transparent and effective.
The new system, known as the Third Sector Investment Programme, replaces the 'Section 64 General Scheme of Grants'. There will be two new funding schemes for 2009/10, which are now open for applications.
Charity-related readers who are interested in applying for funds should log into www.dh.gov.uk/thirdsectorinvestment.
Applications for 2009/10 investment are now open. The closing date is 8 September 2008 for stage one applications.
Social networking site launched by The Transplant Trust
The Transplant Trust (formerly Transplants in Mind) has launched the UK’s first social networking site for the transplant community.
Sarah Brown, wife of the Prime Minister, Gordon Brown, launched the www.thetxspace.com site during National Transplant Week from 6-13 July.
The Transplant Trust chairman, John Wallwork, said: “We are delighted to announce the launch of this vital social networking site. This is, we believe, one of the first sites of its kind in the UK.
“It will enable interested individuals to come together to share their experiences and knowledge of all aspects of transplantation. That will include clinicians, nurses and researchers plus patients, their families and carers.
“With over 8,000 people on waiting lists for transplants, sources of information are critical. This site will enable those people – and many more – to access expertise and advice, share their experiences with others, and become part of a very real online support community.
“At the same time, it will enable clinicians, like myself, plus researchers and nursing staff, to share knowledge and develop dedicated online communities. The potential is huge – the rewards are considerable, and we believe that it is a major step forward for the whole transplant community in the UK.”
The tx site has been created for The Transplant Trust by specialist marketing agency TBDA, which has built similar sites for a number of commercial clients.
The launch at No.10 Downing Street was the culmination of a week of activities to mark National Transplant Week and includes the re-naming of the charity, which was formerly Transplants in Mind. Established in 1990 to promote awareness and educate the public about organ and tissue donation for transplantation, The Transplant Trust’s new charitable status now also allows it to fund research into all aspects of organ and tissue donation and transplantation.
For further information, please contact: The Transplant Trust, 2nd Floor, Albion House, Albion Street, Lewes, East Sussex, BN7 2NF.
For The Trust’s Outreach Manager, Sue Pearson, please call on 0117 931 4638, or email: sue.pearson@thetransplanttrust.org.uk.
For the Trust’s Donor Bus, please call Ray Pearson on 07833 976834, or email: raymond.pearson@thetransplanttrust.org.uk
Budding scribes required for Bulletin
Members of the transplant community are being urged to put pen to paper and write articles about their experiences for the Autumn issue of Bulletin, which is due to be published in September.
Bulletin editor, Henny Fordham, is looking for interesting articles on any research you may have carried out or news and features on any awareness events you may have hosted, or accounts of your visits to see transplant facilities in other countries.
If you fancy being a scribe and have any editorial to offer – or know of someone who has – please contact Henny Fordham on 0117 975 7562, or email: bulletin@uktransplant.nhs.uk. The deadline for copy will be the end of August.
Tuesday 29 July - Sunday 10 August 2008
Transplants in Mind is planning its transplant torch relay for 2008
The key to the relay’s success of encouraging more people to join the NHS Organ Donor Register, are volunteers. The charity is appealing for helpers to support the below legs of the relay, which begins in Carlisle on July 29.
The charity is aiming to make 2008 a record breaking year for new sign-ups. The Transplant Torch Relay dates are as follows:
Tuesday, 29 July - Carlisle
Wednesday, 30 July – Donor Bus drives to Edinburgh for the presentation of
the Donor Bus Replica Trophy
Thursday, 31 July – Newcastle
Friday, 1 August – Durham City
Saturday, 2 August – Middlesbrough
Sunday, 3 August – Scarborough
Monday, 4 August – York
Tuesday, 5 August – Harrogate
Wednesday, 6 August - Leeds
Thursday, 7 August – Doncaster (Donor Bus at opening ceremony of Transplant Games in Sheffield).
Friday, 8 August - Rotherham
Saturday, 9/10 August - Sheffield
To be a part of this life-saving success
Contact:
Ray Pearson
Tel: 07833976834
Email: ray@transplantsinmind.org.uk
Transplants featured in Lifesavers, Channel 5, 9pm
This special one-off documentary gives viewers a dramatic behind-the-scenes look at organ transplantation in the United Kingdom. This remarkable work is carried out by a team of medical experts from the NHS who travel the country to retrieve donated organs and deliver them to where they are most needed.
This must occur within a matter of hours in order to achieve the best results in surgery. The film reveals how one young lad’s generosity helped save several lives, and also follows the journey of a 59-year-old heart transplant patient.
David Tibballs is executive producer of the Fever Media Ltd production. It was filmed, directed and produced by Tom Fulford.
Contact:
Anna Mason
Tel: 020 7550 5538
Thursday 7 - Monday 11 August 2008
British Transplant Games 2008
The 31st British Transplant Games will be held in Sheffield for the second time in its history with the majority of the activity being hosted by the University of Sheffield. The Games are open to recipients from four to 80-years-old.
Another fun run is being planned, which is open to all members of the public, family and friends, and is an opportunity to raise some much needed funding for Transplant Sport UK.
For details of the events or if you wish to volunteer your services over the weekend of the games please contact office@transplantsport.org.uk or emma.dean@mls.gb.com or phone Mary Twomey, Administrator TSUK on 01962 865030
Contact
Mary Twoney/Emma Dean
Administrator, Transplant Sport
01962 865030
Saturday 9 - Sunday 10 August 2008
2008 London Triathlon
Two places are still available for heart transplant recipient John Fisher’s team to compete in the 2008 London Triathlon to raise money for his To Transplant and Beyond charity.
The veteran marathon runner is assembling the 30-strong fundraising team to further the charity’s work to raise awareness of the importance of organ donation and to encourage more people to sign up to the NHS Organ Donor Register.
Athletes already signed up for the event include transplant recipients, co-ordinators, surgeons and a family member of a deceased donor. With just two team places still available John is encouraging people to register their interest to take part.
There are three different races open to athletes of differing abilities, the longest of which, the Olympic distance race, involves a 1,500m swim, a 40km bike ride and a 10km run.
Contact
John Fisher
To Transplants and Beyond
08456 252 252
www.heart-transplants.co.uk
Sunday 10 - Thursday 14 August 2008
XXII International Congress of The Transplantation Society
Sydney, Australia
Please see TS website for further information.
Contact:
Saturday 23 August – Friday 29 August 2008
English Channel swim
A seven-strong team of super-fit transplant recipients is aiming to swim the English Channel to raise awareness of organ donation and the NHS Organ Donor Register.
They are Russell Clinker and Ernesto Antonio from Essex; Geoff McCracken and Turlough O’Hagan from Northern Ireland; Steve Deakin from Cheshire; Helen Hayton from London and Phill Mallery from Kent.
The team hopes to make the 22-mile cross-channel attempt between 23 and 29 August 2008. They have previously competed in the British Transplant Games, the World Transplant Games and other sporting events.
For more information and if you would like to offer your support
Contact:
Russell Clinker
Email: transplantswim@btopenworld.com
Tuesday 2 September – Friday 5 September
Experts invited to first International Amyloidosis Symposium
King's College Hospital, London
The first International Amyloidosis symposium to be held in the United Kingdom is being organised by the Institute of Liver Studies & Amyloidosis Treatment Programme at King's College Hospital in London.
The International Amyloidosis meeting on familial amyloid polyneuropathy (FAP) and the systemic hereditary amyloidoses will be staged on 2 to 5 September 2008. It is one of the premier events of the Amyloid Society and is held every three years.
Please see the King’s College Hospital website, http://www.amyloidmeeting.org, for information and online abstract submission. The meeting will bring together physicians from all specialities, scientists, surgeons and transplant teams with a common interest and expertise in the field of amyloidosis.
On the request of the Amyloid Patients Support Network, a patients' day will be held on the 2 September, the day before the official meeting opening date.
Contact:
Dr Arie Stangou and Professor Nigel Heaton
Institute of Liver Studies & Amyloidosis Treatment Programme
King's College Hospital
The Strand
LONDON
Email: arie.stangou@kcl.ac.uk
Email: nigel.heaton@kch.nhs.uk
Friday 5 September – Saturday 28 September 2008
Audio-visual arts project features an insight into organ donation and transplantation
Nunnery Gallery, London
A stunning audio visual account of the real stories behind human organ donation and transplants is being staged by rb&hArts – the arts programme at Royal Brompton & Harefield NHS Trust.
‘Transplant’ comprises an exhibition, a DVD and a limited-edition hardback collection of essays, of which a downloadable version will be put online later this year.
Photographer Tim Wainwright and sound recordist, John Wynne, photographed and recorded over 50 patients, relatives and members of Royal Brompton & Harefield Hospital staff as well as images and sounds from the hospital environment over the course a year.
Arts Manager Victoria Hume said: “In creating this exhibition, DVD and book of essays, our aim is to explore transplantation and the extraordinary issues it raises, challenging public perceptions and creating a resource for information and debate.”
A half-hour ‘composed documentary’ by John Wynne using recordings from Harefield will be broadcast on Saturday 21 June at 10pm on BBC Radio 3’s ‘Between the Ears’.
The main ‘Transplant’ exhibition will run from Friday 5 to Saturday 28 September at the Nunnery Gallery, hosted by Bow Arts. Thursday 4 September will be a private view for the ‘Transplant’ exhibition, including the launch of the ‘Transplant’ DVD and book of essays.
On Wednesday 17 September, there will be a panel discussion in the gallery broadcast live by Resonance FM, a London-based and internet radio station.
From November 2008 to January 2009, the ‘Transplant’ exhibition will be staged at the Beldam Gallery at Brunel University.
The sponsors are the Arts Council of England, The Derek Butler Trust, Harefield Hospital Charitable Fund, Royal Brompton & Harefield Transplant & VAD services charitable funds, Re-Beat, the John Lewis Partnership, and private donors to rb&hArts.
Contact:
Victoria Hume
Arts Manager
Royal Brompton & Harefield Arts
Tel: 0207 352 8121
Email: arts@rbht.nhs.uk
Web: www.arts.rbht.nhs.uk
Education Centre, Alder Hey Children’s Hospital
Liverpool
A national study day organised by transplant co-ordinators from Leeds, Liverpool and Manchester is being staged at Alder Hey Children’s Hospital in Liverpool on Wednesday 1 October.
The Paediatric Symposium in Organ Donation & Transplantation will be held in the Education Centre. The cost at £40 includes the study day, lunch and refreshments. There is a £10 discount if bookings are made before 22 August.
The programme includes paediatric donation and management – in whose best interest? donor family experiences; transplant recipients – the family’s story; small bowel transplantation and ABO incompatibility.
Contact:
Maria Walsh
Tel: 0113 2064553
Email: maria.walsh@leedsth.nhs.uk
Friday 3 - Sunday 5 October 2008
National Kidney Federation Annual Patients’ Conference
Chesford Grange Hotel, Nr Kenilworth
For further details contact the National Kidney Federation.
Contact: Tel: 01909 487795
Fax: 01909 481723
Email: nkf@kidney.org.uk
Web: www.kidney.org.uk
Friday 3 - Sunday 5 October 2008
Bridging the Future – New Opportunities to Increase Organ and Tissue Donation
Riga, Latvia
The European Transplant Co-ordinators Organisation (ETCO) is staging its 5th ETCO
Annual Meeting in Riga, Latvia.
The scientific programme will review the practical aspects of major challenges in organ
and tissue procurement for transplantation, as well as give advice on communication skills, how to handle the media and other topical issues..
Mrs Jane Lewis
ETCO Executive Office
c/o Joan Maragall, 12
08360 Canet de Mar
Spain
Tel: +349 379 42658
Mob: +346 674 19142
Email: secretariat@etco.org or
janelewis@gmail.com
Tel: 01909 487795
Sunday 5 and Sunday 26 October 2008
BUPA Great North Run and BUPA Great South Run
To Transplant and Beyond is looking for people to take part in the 28 th BUPA Great North Run and the BUPA Great South Run as part of its efforts to raise transplant and donor awareness. It has secured six guaranteed places in each event.
The BUPA Great North Run takes place on Sunday 5 October in Newcastle and South Shields and the BUPA Great South Run is on Sunday 26 October in Portsmouth and Southsea.
Contact
John Fisher
To Transplants and Beyond
Tel: 08456 252 252
Mobile: 07956 312298
Email: john@heart-transplants.co.uk
Invitation to the 1st Public Meeting of SaBTO
New King’s Beam House, London SE1
The Advisory Committee on the Safety of Blood, Tissues, and Organs (SaBTO) is inviting people to its first annual public meeting in London on Tuesday, 21 October. The programme is on issues surrounding ‘Variant CJD and Blood’.
SaBTO is a non-departmental public body with an independent chair and members selected by the Appointments Commission for their specific areas of expertise. It provides independent advice to the UK Government and the devolved administrations on the most appropriate ways to ensure the safety of blood, cells, tissues, and organs for transfusion/transplantation.
SaBTO also provides advice on the microbiological safety of gametes and stem cells, and considers both risk assessment and risk management options for Ministers and UK Health Departments to consider.
At their inaugural meeting, SaBTO decided that a public meeting should be held every year, focusing on a particular issue within the committee’s remit. It has been decided that this year’s meeting will focus on issues surrounding variant CJD and blood.
The public meeting will take place at New King’s Beam House in London between 2pm and 4pm on Tuesday, 21 October. If you are wish to attend, please email SaBTO@dh.gsi.gov.uk, or call 0207 972 4750 by Friday, 19 September.
Further detailed information about SaBTO and its remit can be found at www.advisorybodies.doh.gov.uk/acsbto/index.htm.
Contact
Tel: 0207 9724750
Email: SaBTO@dh.gsi.gov.uk
Charity seeks ‘paranormal investigators’ for haunted tower trip
Layer Marney Tower, Colchester
Kidney Research UK is celebrating Halloween by hosting a ghost investigation at the 16th century Tudor gatehouse known as Layer Marney Tower, near Colchester in Essex, on Thursday, 30 October, from 8pm to 2am.
Legend has it that the ghost of Lord Henry Marney reputedly haunts the tower, which very rarely opens its doors to paranormal investigators.
Anyone who wishes to experience ‘A Night of Fright’ and join renowned paranormal investigators, Ian John Shillito and Steve Parsons, of Living TV’s ‘Most Haunted’ programme, should register for the event.
The experience includes an exclusive tour, group vigils, psychic and ghost hunting experiments and the chance to work with experienced psychics and paranormal investigators, including Ian John Shillito and Steve Parsons.
It is open to anybody aged 18 and over. Registration is £25 per person, plus a minimum sponsorship of £100.
If you would further details, or to register, please contact Georgia McCormack, community fundraising manager.
Contact
Georgia McCormack
Community Fundraising Manager
Tel: 01480 216016
Mob: 07950 510745
Email: georgiamccormack@kidneyresearchuk.org
Thursday 6 – Saturday 8 November 2008
International Congress, ‘A Gift For Life. Considerations on organ donation’
Auditorium della Conciliazione, Rome
An international congress on organ donation, ‘A Gift for Life. Considerations on organ donation’, is being staged by the Pontifical Academy for Life (PAV), the World Federation of Catholic Medical Associations (FIAMC) and the Italian National Transplant Centre (CNT).
Topics will cover current ‘state-of-the-art’ transplantation systems, ethical and anthropological dimensions of organ donation, and the theoretical, ethical and legal aspects of ‘living wills’ in relation to the donation of organs and the role of the mass media.
His Holiness, Pope Benedict XV1, may attend the last day of the congress, which is expected to attract scientists, researchers and experts on ethical issues from the scientific world and from Catholic associations.
Contact:
Eddie McDonagh
Key Congress & Communication
Via Makalle 75
Padova
Italy
Tel: 049 872 9511
Fax: 049 872 9512
Email: info@keycongress.com
Web: www.keycongress.com
Monday 24 – Tuesday 25 November 2008
ITNS European conference to debate transplantation issues
Royal College of Physicians, London
Around 140 delegates are expected to attend an ITNS European conference on transplantation taking place in London in November.
The two-day event, ‘State of the Art Transplant Nursing: A European Flavour’, is being organised by the International Transplant Nurses Society. Contact:
Moria Perrin
Email: moira.perrin@uhb.nhs.uk
Web: www.itns.org
2009
Wednesday 11 March – Friday 13 March 2009
Diabetes UK Annual Professional Conference
SECC, Glasgow
Diabetes UK’s Annual Professional Conference (APC) is one of the largest healthcare conferences in the UK, attracting up to 3,000 attendees each year.
Innovative and invaluable to healthcare professionals, the conference delivers information on the latest global developments in diabetes care and research, offering a unique opportunity for delegates to network with professionals from varying fields and positions including researchers, directors, specialist registrars, GPs, specialist and practice nurses, paediatricians, dieticians, consultants, podiatrists, psychologists and pharmacists.
The exhibition brings together those from the voluntary, corporate and pharmaceutical sectors who share an interest in diabetes care.
This year’s theme is ‘The changing face of diabetes’, exploring how diabetes care has evolved, highlighting new developments in research and clinical practice and celebrating the 75th anniversary of Diabetes UK.
Abstract submission opens online beginning of August.
Deadline for submission is 17 October 2008.
Registration will open online in September 2008. Deadline for early bird registration rate is 23 January 2009.
Get updated: register online to the e-mailing list to keep updated with latest conference news.
All information is on www.diabetes.org.uk/apc .
Contact:
Conferences Team
Diabetes UK
Macleod House
10 Parkway
LONDON NW1 7AA
Tel: 020 7424 1000
Email: conferences@diabetes.org.uk
Web: www.diabetes.org.uk/apc